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{Friday Feature} Keeping My Baby Safe from RSV
Oddly enough, I knew about Respiratory Syncytial Virus (RSV) before having a baby of my own. Friends of mine had had a daughter born full-term and she contracted RSV her first year. She was so sick she...
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My RSV Story. My Voice.
This is still the hardest part of the story to tell. The story of my girl born way-too-soon, weighing way-too-little. Because this is the point in the story where we let our guard down. Where we...
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Three of the Scariest Letters Ever: RSV
When you have a preemie a ton of things go running through your mind, especially illness. I remember the doctors talking to us about Respiratory Syncytial Virus (RSV). As soon as I heard everything...
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You Know You Are a Preemie Parent When…
When Hand to Hold asked NICU parents what they thought was unique to parenthood after their baby's hospital stay, parents were eager to share. There are some eye-opening differences in perspective for...
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The Pediatric ICU: Navigating a Hospital Stay After the NICU
We work so hard to keep our children healthy this time of year. I say work because it can feel like a job sometimes. We manage family and friends who want to visit, making sure they aren’t sick and...
View ArticleThe Battle for Synagis
The following post was submitted by Stacey, a reader of Preemie Babies 101: “Where to start? I wanted to share our struggle with getting the RSV shot for the second season so as to help others feel...
View ArticleFree Printable :: Germ Free Zone Sign
In just 2 short months, many of us will begin our “house arrest” for RSV and flu season… doing everything we can to protect our little ones from those life-threatening germs that run so rampant that...
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Isolation, From Your Preemie’s Point of View
Let’s pretend you are a premature baby, living the hard NICU life. You have immature lungs, brain, digestive tract, immune system. You are expected to breathe air before you’re ready, to regulate your...
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Next FB Chat: Keep Your Child Well During RSV, Cold & Flu Season
Mark your calendar for Wednesday, October 23, 2013 for Hand to Hold’s next Facebook chat from 11:30 am to 12:30 pm CT on Hand to Hold’s Facebook wall. Neonatologist Dr. Mitchell Goldstein and RSV...
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{FB Chat} Keep Your Child Well During RSV, Cold & Flu Season
View the story “{FB Chat} Keep Your Child Well During RSV, Cold & Flu Season” on Storify
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Surviving the Long Winter Quarantine
I called it the Long Winter, the one that barricaded me in my home with my preemie son. So far, it was the most challenging period of my life. People said that they felt sorry for us during the 150...
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{FB Chat} Coping While Under Quarantine
Looking at ways to celebrate the holidays and enjoy meaningful family time even when you hear the dreaded word “quarantine.” Emma Trenti Paroli, NICU mom of a 29-weeker and co-author of Preemies: the...
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Preemie Moments
I call them my “Preemie Moments.” Those instances that appear to be just mere coincidence; the moments in time and space where we just “happen” to be there, but the chills running up and down our arms...
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12 Tips for Getting Synagis Injections Approved
Getting Synagis injections approved by insurance companies can be cumbersome, but for me the threat of my babies catching RSV was always worse. So, I stumbled my way through several Synagis approval...
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Fighting the Fear of Flu Season (and other nasty viruses)
RSV. Influenza. Back-to-school germs. And now… Enterovirus. If you’re anything like me, those things scare you to no end. What if your newly released NICU baby gets sick? What if your now 1-year-old...
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The Importance of Hand Washing and Sibling Touch
Wednesday, October 15th is Global Handwashing Day. We hope you’ll enjoy these tips, as well as our pro-insights article later this month on the topic of hand washing. I saw the excitement in my...
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Healthy Breathing: 5 Tips for Managing Respiratory Symptoms
Many of us have experienced the paralyzing fear that comes as we watch our child struggle to take a breath. You’ve probably been there many times. There isn’t much that has frightened me more than my...
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4 Ways to Naturally Boost Your Preemie’s Immune System
One of the big things your NICU team will talk to you about upon discharge is protecting your baby from getting sick. With RSV season still in full swing, this is a hot topic! Most preemie lungs are...
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5 Ways to Prevent Respiratory Infections
Cold and flu season is here, which means you’ve probably started to hear a lot of people coughing and sneezing. When you’re a NICU parent, these sounds can make you panic. We aren’t just worried...
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5 Myths about cold, flu and RSV
Cold and flu season is beginning, and as kids go back to school, the chances of catching and spreading viruses and infections increases. NICU parents dread this time of year when we have to weigh the...
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